If someone whom you love is sick with lupus, this is also for you will have some impact. Whether it is your spouse, child or close friend of the disease in any way affect your relationship.
It can be hard to know how to deal with a chronic disease such as lupus. In many cases, you do not even understand its symptoms. Your loved one will look healthy one day and the next day will not be able to get out of bed. Sometimes lupus can cause you to make changes to your established life. This can cause stress in the family and other personal relationships.
But it is important to remember that lupus also frustrates those who have it. Here we offer seven tips that you need to understand about lupus and how to support their loved one who suffers from this disease.
Talk about lupus and its impact is open
Honest, open-minded attitude - that's the best way to keep your relationship strong. But when someone has a chronic illness, people often do not talk about it. They are afraid to say something wrong or hurt the feelings of another person.
Avoiding discussion of lupus, which you are sick or your feelings can only hurt. For you may be very important to share your feelings with someone. But it is also important to someone who is sick with lupus, to be honest about how he or she feels and need.
It is not always easy to talk about their feelings, especially if you are offended or angry. But it is important to know that any emotional reaction to your illness, whether it is fear, frustration or anger, that's fine. Try to find a way to share their feelings openly with someone who is dear to you, and that he also told you about their feelings.
If you need help to start a conversation about difficult feelings, your family doctor can help. It will help you to make your relationship honest and will treat everyone with compassion.
To understand lupus, as the disease
Learn all you can about lupus and its symptoms. This will help you better understand what is necessary to take your loved one. This disease can be very severe for the understanding of other people, because the symptoms are very different. But the more you know about lupus, the more compassion arises in you to your loved one.
Ask your doctor to recommend someone close to you literature on this disease. Or search among reliable sources on the Internet. You can offer your loved one to accompany him during visits to the doctor.
Accept the changes that entail systemic lupus erythematosus
People suffering from lupus often have to make drastic changes in their lives. They can no longer take up a lot of what used to do before. Depending on your relationship, these duties may go to you.
Your role in relationships may change and you need to be ready for this. If your partner is usually responsible for all household chores and children, as well as making money, perhaps now these responsibilities will be transferred to you.
Change can be difficult, especially if they affect your personal relationships. But if you take them, it will help you go further.
Ask, Do not need something your loved one with lupus
If you want to help your loved one in some way, but not sure what he wants, just ask him about it. It may sound simple, but many people believe that they know what to other people, so they do not even bother to ask. Lupus can be very different, so if one day a person needs one, then the next day he will need quite different. The only way to find out - is ask.
Sometimes it is useful to offer some assistance you can provide. For example, ask if you can pick up the kids from school, or to buy something at the store. Sometimes it is useful to offer concrete help, and not something vague, but first still be sure to ask before you do something. Do not think that your loved one can not do something, instead of just sincerely offer your help, if necessary.
It is unfortunate when people automatically come to the conclusion that they can do something. It should at least set a goal, and often you can do more than think about you people.
Friendly cheered when needed
If you feel that your loved one lose heart, I offer some fun together. For example, you can offer a trip to the cinema to the film that you both enjoy together or go to your favorite restaurant. You can also invite him to join a support group of people with lupus to receive extra support and encouragement.
Provide support themselves
Even if you do not get sick with lupus, you also need support and encouragement. You can experience the whole gamut of emotions
Emotions and culture: how to decipher the emotional code
From fear and anxiety to frustration and anger. It's perfectly natural, but you need support, so that you can give vent to his feelings.
Depending on your role, you can help support group of people who care about the families where there are sick with lupus. Some of these groups allow family members to attend meetings. You might be helpful to talk about their feelings in a group of people who are going through the same thing. This helps you understand that you are not alone and that others are experiencing the same feelings as you.
Take a vacation to relax from lupus
If you care about the person with lupus, it is important to occasionally take a vacation and go somewhere to get away from the situation. You may feel guilty if you need a little time to leave the patient, but it is important to take care of yourself, it is in the interests of the person and you.
You need to be able to gain strength so that you have enough energy to be close to a sick person, you love. Find ways to nourish yourself, let it be going to the movies, walk, visit friends or just taking a bath.